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  1. List of Rare Diseases | A-Z Database | NORD

    A rare disease is a disease, disorder, illness or condition that affects fewer than 200,000 Americans. There are over 10,000 rare diseases that together affect more than 30 million Americans. NORD is …

  2. Rare Disease Facts and Statistics | NORD

    Rare Disease Facts & Statistics When it comes to understanding rare disease, start here. Rare diseases are an urgent public health challenge affecting families in every community across the United States …

  3. National Organization for Rare Disorders | NORD

    Feb 24, 2026 · We provide information about rare diseases, patient organizations and other resources. We also promote awareness of rare diseases among physicians and other medical professionals.

  4. Rare Disease Research - National Organization for Rare Disorders

    Accelerate rare disease research through strategic funding, collaborative partnerships, and innovative approaches to understanding complex medical conditions.

  5. Rare Disease News - National Organization for Rare Disorders

    Feb 23, 2026 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

  6. Rare Diseases Support, Resources & Help | NORD

    Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy …

  7. Rare Disease UK - National Organization for Rare Disorders

    The Rare Disease UK is the non-profit, National Alliance for rare diseases and all who support them in the United Kingdom. Their members include patient organizations, researchers, academics, …

  8. Centers of Excellence - National Organization for Rare Disorders

    In addition, researchers at each Rare Disease Center of Excellence are working with doctors and patients to find more treatments and cures for rare diseases. NORD is interconnecting this Network …

  9. Financial Assistance For Patients With Rare Diseases | NORD

    Patient Assistance Programs that can help patients afforddrugs, offer medical assistance, and help pay medical bills.

  10. North Carolina - National Organization for Rare Disorders

    Summary In the latest edition of the NORD State Report Card we analyze all 50 states and Washington, D.C., on nine policy issues that impact the rare disease community. Each state has their own …